Saturday, February 11, 2017

MRI Update

Posted 02/11/2017 by Taline Perez

February 17 will be 6 months since we first rushed to the emergency room the day after school started. We had an MRI scheduled as follow up for the radiation and chemo for 7 weeks. Sergio was not able to do it. He couldn't stay still and tried to pull everything off. He is still actually quite strong on his left side and got out of the strap as well, used to keep him from falling off the table. We are rescheduled for this coming Tuesday with a sedative, Atavan. We all sort of missed that this was his first outpatient scan without any sedatives. Pray that it be successful. Although I'm not sure how much he or I need the MRI to know what is happening. He told me two weeks ago, " I have to go. I have to go. I have to go." through tears but comforting me, hugging me and pulling my head close to his chest. Not that any of us know when, but he probably feels his body changing. He told Adriné the same thing last week after she told him, "I love you Baba. I don't want you to die Baba. " which she says daily and nothing new in their daily routine except for the added sentence, " I don't want you to die." as she cries uncontrollably once the words are said. This week he has said several times, "Let go." to me. He has been very sad because he does not want to die. He can't say those words. The conversation is more of me making statements and him saying "yes" or "no". It takes about 15-30 minutes usually. Here's a shorter version. "Are you angry?" " No." " Are you sad? " "Yes." " About family?" "No." " Work?" "No." " Not being able to talk?" "No." "Having cancer?" "Yes." " Lapena alta ba laka laka atabamaka ahhha aamanadatalkaka." "Are you saying you want to die?" " NO!!" "You don't want to die." "YES!" I just spent a few short minutes looking through 11 1/2 years of pictures on my phone before writing, the amount of time we've been married. All it took was a few minutes. It's been too short. So so sweet and way too short. We use to talk about who would die first, and how maybe we would be lucky enough to die together like in the movies. Yes, Sergio literally talked about everything. Then, how whoever died first would be the lucky one because the other one would be left behind miserable. At least I can say I have experienced love like that.
Mina's note: Please leave a comment so Taline and Sergio can share in your thoughts.

10 comments:

  1. I wish we could all live forever! And yet we will! But I mean together... Thanks for sharing your love for each other. It's lovely.

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  2. The photos you share, as well as the beautiful word pictures, are so telling of the wonderful love you all share. I'm so sorry for the degree of pain and grief that comes along with it. Your writings, Taline, of your relentless love for Sergio and his clear, if difficult, expressions of love for you, as well as your experience of your dear Dad and love for him, have been lovely to see, and to me so clearly mirror God's love for us in our broken world. It is hope-giving to see it expressed on this horizontal plain, here...THANK YOU!

    You are on my heart so much, and I am praying for you all. May I share Isaiah 42:16 with you...where God says, "I will lead the blind by ways they have not known; along unfamiliar paths, I will guide them. I will turn darkness into light and make the rough places smooth; these are the things that I will do, and I will not forsake them." In the blindness and unfamiliarity of the future, I'm praying you will continue to sense the secure tug of His gentle hand, leading and guiding you through all the "weeds" of your journey. Certainly, in your case He is using you to paint a beautiful picture of love, faith, trust in His God-ness for the rest of us to see.
    Grateful and prayerful for you,
    Lillian

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  3. Sergio was my children's teacher years ago. Even though it was years ago, he left an imprint on my life and theirs. I have been praying daily for you and your family. I am sure everyday is heartbreaking for you. The Poompan family wishes you love and patience. In 2010, my husband also had a brain tumor. He is fine now, but it was the hardest time of his life and mine. I had to be patient, I had to slow down. If there is anything I can do for you, please don't hesitate to ask. My phone number is 562 587 1295. I will be at the Fundraiser on the 24th. (((HUGS)))

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    1. My name is Bonnie Poompan. Please give Sergio my best.

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  4. Prayers continuing for you and the girls...It is a difficult journey..May God give and strength and grace to endure...much love..Judy

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  5. Hula and family

    Oh the pain of loss...I can't imagine it! Know you are covered everyday in prayer during this journey from my corner of Africa.

    Spree or Brenda

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  6. Praying from CO. May the Lord comfort and strengthen you both each day.
    Gusty - Briana Ross

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  7. I've never met Sergio in person, but I knew Adriné. I did my student teaching at her school. I'm currently the long term substitute with Sergio's class and they all miss him so much, always asking me when he's coming back. Most of them don't know about his condition. But hearing about him from other teachers and past students, I wish I could meet him. He sounds like an amazing, godly man. Prayers are said daily for you and your family. -Stephanie Osdale

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  8. Hula,
    Looking back on my growing up years, you are one of just a handful of mentors that God used to greatly shape my relationship with Him. In years of letter writing and several visits after camp days, you showed me that giving your whole life to serve Jesus joyfully was the best way to live. By His grace, I'm continuing to live that way today, 30 years later. Thank you, friend! I'm praying for you and your family. Mark Thengvall

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  9. We have been battling illness after illness in our family. At least one or two of us has been sick at the same time and then we all take turns. We have not wanted to take our sicknesses to all of you. We pray for all of you every day - literally every day! Our hearts are full and break for all of you.
    Alex' mom was diagnosed with congestive heart failure, so we are trying to serve her and be there for her as well. She wants to be strong about it, but we know that it is so hard to be sick.
    God is WITH YOU - we are praying for you through this journey.
    Sergio - keep persevering - you are a true encouragement to us amidst all your suffering.
    Love, the Jauregui 4

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