Friday, February 24, 2017

MRI Results

Posted 02/24/2017 by Taline Perez
Nairi woke up Wednesday morning not wanting to go to school which is a rare rare occurrence for such an extrovert.  She followed me into the bathroom which is what she does when she wants to talk privately and said, 
“Do you think God forgot who He is? “  
“No, I don’t think so.” “What do you mean?” “ "Well,  I mean do you think He forgot the magic He can do?  I mean I know it’s not magic.  The powers He has."
"Do you think He forgot the powers he has?” 
“No, I don’t think He forgot. Why?” 
“Because He’s not healing Baba and I’m very sad about it. And mad at God.  I love Him but I’m mad too.” 
“So am I.  But He can handle it. And you can be mad at Him and love Him at the same time.” 
     Nairi is where Adrinรฉ was in August/September.  I spoke to them about the MRI results on Saturday after receiving a call from the oncologist on Friday.  I knew I was hearing half of it incorrectly as I heard the pounding of my heart getting louder and drowning out his words.  I went to an appointment with a friend on Tuesday without Sergio because we can’t transfer him and the two to three hour activity of using transportation is not feasible.  Another thing I have trouble understanding.  Transportation for the handicap,  possibly the most physically weakest population,  that takes two to three hours of waiting and driving around.  Shouldn’t they be waiting the least? It makes no sense to me.
     They were able to read 10 minutes of the MRI. The oncologist said the tumor is larger than it was before the 35 times/ 7 week radiation and chemo began. It is also blocking where the fluid flows in and out of the skull, so as a result Sergio has hydrocephalus. This causes pain as well as an array of other symptoms. “The worst of the worst.” he said.
     As options are presented to us, the girls and I have already decided that we want to be together as a family with each other in any circumstance.  My mother and grandfather both past away at home. I honestly did not know there was any other way. It can be a much needed help depending on the situation, other options.  Perhaps in our country where we don’t really see people dying of starvation,  lack of vaccines, or lack of medical technology like other places do,  we easily forget that dying is a part of life and it is a normal thing. If I recall correctly,  hearing is one of the last senses to go.  Sort of an incredible phenomena to be in two worlds at the same time and hear what people are saying to you. 
     The fight is not over, but there comes a time where being in God’s presence is a far better way to live than suffer in your temporal shell.
     Amidst all of this emotional exhaustion,  the Whittier Daily News contacted us to do a piece for the upcoming fundraiser.  Sergio gave it his all and then slept all day! Then ABC news contacted us because they had seen the article and thought it would be great story to expand.  Never even went through my mind. God is creative!
     Although I struggle to understand how and why we have been chosen to be covered for every single detail of our needs,  God is meeting and covering every single detail and cost.  Maybe He knows how large the hole will be that will never be filled.  


Mina's note: Please leave a comment for the Perez family after reading.
 

15 comments:

  1. Hello Taline, I have been following along with your blog and am continuing to lift your family and Sergio up in prayer. There are tears with each post. Blessings to you and Sergio and the girls during this time.

    Love and prayer
    Gretchen

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  2. Mr. Perez, I just want to let you know that I am grateful that God put you on our path. You never gave up on Esteban and we appreciate it from the bottom of our hearts. You were not only a teacher to him, but I know you became a very important person for him. His huge smile when he shared with me the moments he spent with you in class and during lunch proves it. There are many teachers in the world, but only a few who really take the time to get to know his students and help them through struggles. I remember our conversation when you said you didn't know what else to do for him, I felt very scared and just the same. Deep inside I was hoping you wouldn't give up on him or retaliate against him because you were probably fed up. And you didn't! This means the world to me. It means a lot when someone who is not blood related to your children care about them so much as if they were their own. Even last year, you approached him in a time of need when not too many people seemed to care. I am grateful! Mrs. Perez, you are an amazing woman, mother and wife! I will continue to pray for you and your family. Please feel free to reach out to me if you need anything.

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  3. Not sure what to say...but I am praying for you! "Mr. Serge," I think you're a pretty awesome guy! I'm so glad you found such a wonderful woman and your girls are just so adorable! God is good, all the time. It's just so awfully hard sometimes. Big hugs from AZ, Aimee

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  4. Thank you for sharing your pain and your heart. We are praying for Sergio and you all.
    Tom and Anita

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  5. me and my family are praying for you and your family. god bless you.
    from, brooke espinoza and family

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  6. Dear Taline,

    This is Ruth in Thailand, far away and just catching up with your recent blogs. I am not sure if we actually ever met each other, but I will look forward to the chance the next time we get to be in La Mirada.

    My heart aches with yours, yet I am also uplifted by your incredibly strong faith and hope. I feel like I have come to know your amazing family, and I thank God that your family is one in which love is expressed verbally, physically, tangibly and now with many, many tears. It's a significant gift that your daughters feel safe in expressing the longings and doubting in their hearts. I pray God will speak tangible words of comfort to them, to you and to Sergio. This is a journey no one would choose, and I thank you for opening your heart to us...for teaching us how to abide in Him even while your hearts are breaking in ways we only get a small glimpse of. I will continue to bring your family to the throne of grace and pray that His grace will enfold all of you now and in the days ahead.

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  7. On the road, looking at a huge statue of The Sacred Heart to the left side, then I looked up at the sky and prayed with all my heart for a miracle and suddenly a shooting star right in front of my eyes! My heart says it was God letting me know he is listening. God Bless you all!!! ๐Ÿ’•๐Ÿ™๐Ÿผ

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  8. Hi Taline and Sergio, you are never far from Karen and my thoughts... and regularly in our prayers. Ed Morsey

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  9. Praying for you all. There are no earthly words I can offer. May God's heavenly words reach you soul and heart.

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  10. My heart is heavy as I follow this journey your precious family is having to travel. At the same time, I'm deeply inspired by your honesty in both your weakness and your faith and dependence on God's strength to carry you through it. I shared on FB the link to the Whittier news article, and a dear friend of mine, Sevan Dilanchyan, remembered you from a Bible study you both attended many years ago, and wanted me to pass along that she is also remembering you in prayer. Another friend I've know since high school saw my post and told me that her daughter, who went to Laurel and remembers Sergio fondly, teared up when she saw it. You and your family have touched so many with your story, and there is an army of saints who are lifting all of you up in prayer. With love, Grace Alcorn

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  11. We love you guys...praying, praying, praying....virtual hugs! - Annette

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  12. Mr Perez & Family,

    Mr. Perez was both my boys Andrew and Joseph's 2ed grade teacher. He helped my kids so much, he gave them confidence in there education. I owe Mr. Perez so much for the help he gave my boys that struggled so much. My heart goes out to the family.

    We love you Mr. Perez

    Andrew, & Joseph Ojeda,
    And Mama Joanna Ojeda

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  13. Taline, thank you for taking the time to journal. Blessed are you in our Heavenly Father and our Lord of our life Jesus. To the glory of Kingdom of God you show that you are a letter from Christ written with the Spirit of the living God. The Spirit that gives life. Blessed are you Perez family the salt and light of the earth the apple of His eye. Blessed is the Wisdom and Understanding you have obtained. Such confidence as this is yours through Christ before God an awe inspiring witness. ๐Ÿ’“
    2 Corinthians 4:7-16

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